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DATA PRESENTATION

Danish Registry of Childhood and Adolescent Diabetes

DATABASE

Primary variables


Age

Albuminuria

Blood pressure

C-peptide

Ethnicity

Familial diabetes

Gender

Haemoglobin count

Ketoacidosis

Municipality of residence

Neuropathy

No. serious hypoglycaemic events

Retinopathy

Introduction

The Danish Registry of Childhood and Adolescent Diabetes (DanDiabKids) is a national clinical quality database that contains data about treatment and care for children and adolescents with diabetes. The purpose of DanDiabKids is to monitor and improve the quality of Danish treatment of children and adolescents with diabetes.

DanDiabKids is part of the shared Danish Diabetes Database (DDD) and has been collecting national data on children and adolescents with type I diabetes since 1996. DDD has the overall aim of developing, monitoring and providing an overall picture of the quality of Danish treatment of diabetes.

More details

Abbreviation
DanDiabKids
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises children and adolescents aged under 18 diagnosed with type I diabetes
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Odby
T: 21 68 75 70
E: ANNODB@rkkp.dk
Website - data administrator
bit.ly/dan-diab-kids