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DATA PRESENTATION

The Danish Schizophrenia Registry

DATABASE

Primary variables


Blood lipids

Blood pressure

Blood sugar

BMI

CPR No.

Duration of Untreated Psychosis (DUP)

GAF score

HbA1c

Psychopharmaca - ADRs

Suicide risk

Treatment med psychopharmaca

Vital status

Waist measurement

Introduction

The Danish Schizophrenia Registry is a national clinical quality database that contains information about hospitalized and outpatient patients with schizophrenia. The purpose of the database is to monitor and develop the quality of the treatment and care of patients admitted to or associated with hospital psychiatric services in Denmark.

The condition is diagnosed using ICD-10 criteria and the database covers all patients diagnosed as DF20.0-DF20.99 (either as the primary or secondary diagnosis). Patients with schizoid-type mental conditions, paranoid psychosis and schizoaffective conditions are therefore not included.

All hospital psychiatric units undertaking treatment for patients with schizophrenia have been covered since 1 January 2012 by the requirement to report data to the Danish Schizophrenia Registry. Data is reported to the database using SKS codes via local patient administration systems (PAS) to the National Patient Register (LPR), and data is cross-batched with the CPR Register.

More details

Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients diagnosed with schizophrenia admitted to, or who have been in outpatient contact with, a hospital psychiatric unit
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Lea Grey Haller
T: 21 52 59 08
E: LEHALL@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/skizofreni